An event will be held at the Greek Spot Cafe and Grill on East Broadway in Milford July 1 from 11 a.m. to 3 p.m. to raise awareness of Primary Lateral Sclerosis.

There will be pamphlets, an art action and several raffle baskets. Funds raised will go to the ALS Association.

Juliana Harter organized the fundraiser, which is the second annual event, with her Camp Greenknoll YMCA Leadership Team in Brookfield.

Primary lateral sclerosis (PLS) is a rare neuromuscular disease characterized by progressive muscle weakness in the voluntary muscles. PLS belongs to a group of disorders known as motor neuron diseases.

Juliana’s grandmother suffers from PLS, and that is why Juliana decided to focus on raising awareness.

“I felt that many people didn’t understand why my grandmother had difficulty speaking,” Julianna said. “My grandmother has trouble speaking, walking and communicating with others, including myself. At first I couldn't really understand my grandmother and I would nod my head and answer what I could understand. It really upset and frustrated me. It made communicating with her much harder. I felt that I wanted to help others understand PLS since it is a rare disease.  I never really saw myself as someone who could make a difference with PLS, until now.

“All of my frustration and confusion about this illness inspired me to base my projects on PLS. As this is a rare neurological disorder, I wanted to help others understand this type of disease. I noticed that even the smallest contribution to PLS can make a difference to help find a cure and assist doctors in their research. Most of all, spreading awareness of this rare disease was important to me and my family. Doctors believe that a cure for ALS will help cure PLS”.